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Learn about your risk of carrying the FD gene.

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About FD and the Dysautonomia Foundation

People living with familial dysautonomia (FD) are truly extraordinary. From the challenges they face to the remarkable attitudes they embrace, their stories are inspiring and heartwarming.Hear from them along with doctors, parents and researchers.

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A disease most people have never heard of ...

Familial Dysautonomia (FD) is a rare genetic neurological disorder that effects the sensory and autonomic nervous systems, causing life-threatening medical complications from birth. (More about FD.)

Research funded by the Dysautonomia Foundation has led to a number of breakthroughs in treatment and has led to the discovery of the FD gene. To protect future generations, get tested for FD and other genetic diseases.  (View our FD screening awareness video here.)

The Dysautonomia Foundation is a 501c3 nonprofit organization that has established the world's only FD treatment centers. We are the largest source of funding for FD treatment and research in the world. (More about us here.)


In our latest video, meet a group of parents who face the difficulties of FD with grace, humor and determination. If the video does not display properly, click here to watch it. 
 
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Website Disclaimer

The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

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Privacy Policy

The Dysautonomia Foundation will not share any personal information (Name, address, email address) that you submit through this website with any third party organization without your explicit consent.

If you conduct a transaction on our website for the purpose of a charitable contribution, we will not record or store any of your credit card information on our servers or in our records. All credit card transactions are conducted through secure web pages via Verisign, Inc., a leader in secure online credit card and payment processing.

If you make an online contribution to one of our events or fundraisers, we may ask your permission to list your name and/or the amount of your contribution and/or the name of the organization you represent (if applicable) as a sponsor of the event or as a contributor to the event. We will not list any of your personal information without your consent.

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The Dysautonomia Foundation is a registered 501(c)3 non-profit organization. Federal ID 13-6145280

Contributions are tax deductible to the extent permitted by law.
 
Dysautonomia Foundation, Inc.
315 W 39th St, Suite 701, New York, NY 10018 212-279-1066
(c) 2013 Dysautonomia Foundation, Inc. The FD logo is a registered trademark of the Dysautonomia Foundation, Inc.  
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