Faces of FD  logo
 
Dysautonomia Foundation, Inc.
 
Home      About FD       Donate      About Us      News       Events

dna FD Gene
Photos
Videos
FD Bracelet
Blue Genes
FD Day 2010
Chicago Golf Outing
NY Golf Outing
FD Cycle Tour
 
Follow us on

 
Contact Us

  
  Familial Dysautonomia (FD)
 

  A disease most people have never heard of . . .

Familial Dysautonomia (FD) is a rare genetic neurological condition that affects the sensory and autonomic nervous systems, causing severe gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic problems. Watch our awareness video.
 

  A Foundation dedicated to helping them . . .

The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that supports medical treatment, research, public awareness and social services for the benefit of people afflicted with FD. The Foundation has established the world's only two FD treatment centers and is the largest single source of funding for research and treatment specifically for the benefit of people with FD. Watch our video about FD and the Dysautonomia Foundation's work.
 

  Remarkable progress, incredible challenges . . .

FD was once considered a fatal disease, but the Foundation's efforts have resulted in dramatic improvements in the quality of life and life expectancy for FD patients. Still, people with FD must overcome tremendous challenges, including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
 

   Join us, and make a difference in their lives.

The gene that causes FD has been identified. Genetic therapies are possible, but they are costly and time-consuming to develop. A new clinical research facility is now exploring new therapies. Basic, clinical and translational researchers are working together to improve survival and create positive outcomes for people with FD. With your help, we can make a real difference in their lives.
 
 

FD News
FD in the News
A family's experience with FD, and their efforts to raise awareness and funds for FD research through the FD Cycle Tour. more
FD Screening Bill Vetoed
NY Governor Paterson vetoes vital FD screening and education legislation. more
Oxygen on Airplanes
Airlines have changed their policies on providing in-flight oxygen. We make it easier for FD patients to arrange for portable oxygen concentrators for air travel. more
FD in the News
FD is featured in an article in the journal Science. "Chasing a Disease to the Vanishing Point" explores the challenge of attracting the interest of donors and researchers. more
Research Consortium
FD is one of several diseases being studied by a research consortium of the nation's foremost autonomic experts, organized by the NIH's Office of Rare Disorder's. more
The Dysautonomia Foundation is a registered 501(c)3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.
 
Dysautonomia Foundation, Inc.
315 W 39th St, Suite 701, New York, NY 10018 212-279-1066
(c) 2010 Dysautonomia Foundation, Inc. The FD logo is a registered trademark of the Dysautonomia Foundation, Inc.   Disclaimer    Privacy Policy