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Familial Dysautonomia (FD)
A disease most people have never heard of . . .
Familial Dysautonomia (FD) is a rare genetic neurological condition that
affects the sensory and autonomic nervous systems, causing severe
gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic
problems. Watch our
A Foundation dedicated to helping them . . .
The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that
supports medical treatment, research, public awareness and social services
for the benefit of people afflicted with FD. The Foundation has established
the world's only two FD treatment centers and is the largest single source
of funding for research and treatment specifically for the benefit of people
with FD. Watch our
video about FD and the Dysautonomia Foundation's
Remarkable progress, incredible challenges . . .
FD was once considered a fatal disease, but the Foundation's efforts have
resulted in dramatic improvements in the quality of life and life expectancy
for FD patients. Still, people with FD must overcome tremendous challenges,
including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
Join us, and make a difference in their lives.
The gene that causes FD has been identified. Genetic therapies are possible,
but they are costly and time-consuming to develop. A new clinical research
facility is now exploring new therapies. Basic, clinical and translational
researchers are working together to improve survival and create positive
outcomes for people with FD. With
your help, we can make a real difference in their lives.
DYScourse - FD
News - now available online
The latest news about the Foundation's work, the FD community
and FD medical treatment & research is now available on our web
|No Tears: Life
strip focuses on the lighter side of life with FD
FD events! -
See photos of our
Bowlathon join us for the
FD Day Conference, and
get in on the fun at our
|Oxygen on Airplanes
Airline oxygen policies have changed.
FD is one of several diseases being studied by a research
consortium of the nation's foremost autonomic experts.