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Sunday, June 1st, 2008
10:00 am – 3:00 pm
Alumni Hall, NYU Medical Center
550 First Avenue, NY, NY
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10:00 AM
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Continental Breakfast /
Meet with Friends |
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10:30 AM
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Welcome and Introduction
David Brenner, Executive Director
Ed Baranoff, President
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11:00 AM |
Presentations by
Physicians and Researchers
Felicia B. Axelrod, MD
Horacio
Kaufmann, MD
Susan
Slaugenhaupt, PhD
Gabrielle Gold-von Simson, MD
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12:30 PM |
Dystinguished FD Adult
Awards - Felicia B. Axelrod, MD |
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12:45 PM |
Lunch / Meet
with Friends |
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1:30 PM |
Q&A with the experts
Room A- Goals of Clinical Research
Felicia
Axelrod, MD and Horacio Kaufmann, MD
Room B- Progress in Genetic Research
Susan
Slaugenhaupt, PhD; Gabrielle Gold-von Simson, MD
and Channa Maayan, MD
Room C- Maximinzing Function Through Supportive Care
Stuart
Ditchek, MD; Albert Matalon, MD and David Feldman,MD
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For Children / Young Adults:
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Morning |
Children: Balloons, Photos, Airbrush T-Shirts, Games
Teens / Young Adults: Meet w/ Philip Giarraffa,
Balloons, Airbrush T-Shirts, Photos
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Mid-Day |
Animal Show
Lunch
Magic Al show
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For FD Adults:
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Morning
Mid-Day
2-5 PM
Evening |
Presentations
Lunch
Meet with Dena Berlin, Meet with Experts, Photos,
Airbrush T-Shirts
Casino Party
Dinner at Restaurant |

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