Samantha Myers Dedicates Bat Mitzvah to Foundation
following is an excerpt from the speech Samantha Myers gave at her Bat
Mitzvah this past summer.
We want to thank Samantha for her gift and her lovely words.
Torah Portion is Devarim which is the beginning of the fifth book of the
and the Israelites are at the River Jordan.
They have been wandering in the desert for forty years since they
left Egypt. God
has told Moses that the Jews who were slaves would not be able to enter
the Promised Land, except for Caleb and Joshua.
This was because they lost faith in God when they built the golden
calf. God also
told Moses that he too could not enter the Promised Land.
this section, Moses is reminding the Jews of everything that happened when
they were wandering in the desert, especially all the things they did
wrong, and all the battles that they fought.
I think he is doing that because he knows he is about to die and he
wants to be sure that all the Jews will obey and respect God after he
passes away. Moses
has taken care of them for forty years and he is worried about them and
their future when he won’t be there.
They are like his children.
And you know how parents are.
Sometimes they yell because they love you.
connection with the Torah portion is very personal.
I have a lot of challenges in my life.
I was born with a Jewish genetic disorder called Familial
Dysautonomia, or FD for short.
I have to deal with a lot of medical issues every day.
For me, that is like wandering in the desert.
I also have a dream of my own Promised Land, a world with a cure
for FD. That
helps me get through all the tough times, just like the idea of the
Promised Land did for Moses and the Jews.
I think that almost everyone has difficult times, but if they have
dreams about how to make the world better, it makes a big difference.
And I think that even though Moses didn’t get to the Promised
Land, his dream was fulfilled because he helped the next generation there
to live in freedom.
to help make my dream come true, I have dedicated my Bat Mitzvah to
raising money for the Familial [sic] Dysautonomia Foundation to help
support medical research for kids with FD.
I hope that it will help scientists find a cure, or at least ways
to make life easier, for me and all the other kids with FD.
But no matter what happens, it makes me feel really great that I
can make a difference, even if I don’t get to the Promised Land.”
*Parents, FD children, and FD
adults are welcome to submit pieces such as the Bat Mitzvah dedication
above, including achievements, congratulations, thanks, poetry, artwork,
and hopeful anecdotes.
Please contact the Foundation at 212-949-6644, or Fd212dys@aol.com.
copyright (c) 2004 Dysautonomia Foundation, Inc. last modified 8/6/04