Familial Dysautonomia -- Dysautonomia Foundation

Dysautonomia Foundation, Inc

About the Foundation

The following page offers information about the Dysautonomia Foundation, including our mission and services, chapters, members of the Scientific Advisory Board, and contact information.

This Page Includes:
Mission and Services
Chapters
Scientific Advisory Board
Contact Us

Mission and Services

Dysautonomia Foundation, Inc.
633 Third Avenue,12th Floor
New York, NY 10017
(212) 949-6644

President: David Brenner
Executive Director: Lenore Roseman
Assistant Executive Director: Maryon Weill

Click here to read The Dysautonomia Foundation: What We Do, an article distributed at Dysautonomia Day 2001.

Click here to read a summary of the minutes from Dysautonomia Foundation Board of Directors meetings.

Click here to submit a question to the Foundation.

The Dysautonomia Foundation, Inc. is a non-profit organization founded in 1951 by the parents of children with FD. The organization is headquartered in New York City with sixteen chapters located throughout the United States, Canada, Great Britain and Israel.

Supporting Clinical Care
The Dysautonomia Foundation supports clinical medical care for people with FD by:

Maintaining the Dysautonomia Treatment and Evaluation Center at New York University Medical Center

Maintaining the Israeli FD Center at Hadassah Hospital in Jerusalem

Supporting Scientific Research
The Dysautonomia Foundation supports research studies into FD and the FD gene. Basic scientific research regarding FD is currently being supported at a number of prestigious hospitals and universities including:

New York University Medical Center, New York

Mt. Sinai Medical Center, New York

Medical College of Wisconsin

University of Oregon

Johns Hopkins Medical Center, Baltimore

Bar-Ilan University in Israel

Hadassah Hospital/Hebrew University

Massachusetts General Hospital

Grant applications are reviewed annually by a prestigious medical advisory board.

Supplying Informative Material
The Dysautonomia Foundation provides a continual flow of information to families and other lay and professional persons who request medical, educational, or promotional material concerning FD.

Newsletter- published biannually

Periodic bulletins regarding new breakthroughs and care

Brochures and Parent Care Manual

Annual Dysautonomia Day with workshops for families and patients

Bibliography

History, Programs and Accomplishments - Fact Sheet

This Web Site

The Familial Dysautonomia Resource Guide

How You Can Help
A tax deductible contribution to the Dysautonomia Foundation will help in the following ways:

Further research into FD and the FD gene;

Provide grants for eminent scientists and researchers at leading hospitals around the world to study FD;

Maintain the valuable clinical care and research at the Dysautonomia Centers at New York University Medical Center and at Hadassah Hospital in Israel.

Chapters

Boston . Greater Boston . Massachusetts
Chicago . Northfield . Illinois
Dysautonomia Society of Great Britain
Bernie Hattenbach . Norwalk . Connecticut
Illinois . Niles . Illinois
Israeli . Herzlia
Long Island . North Woodmere . New York
Maryland . Randallstown . Maryland
Michigan . Southfield . Michigan
Montreal . Montreal . Canada
Southern California . Tarzana . California
South Florida . Sunrise . Florida
Toronto and Tikvah . Toronto, Canada
Helen Volein . Northern New Jersey
Worcester County . Worcester, Massachusetts

Scientific Advisory Board 2003

Chairperson
Gail E. Sonenshein, PhD
Boston University Medical School

Felicia B. Axelrod, MD
New York University

Michael J. Brownstein, MD, PhD
National Institutes of Health

Joseph Dancis, MD, Hon.
New York University

Robert Desnick, MD, PhD
Mount Sinai Medical Center

Robert Gross, PhD
Dartmouth College

James Gusella, PhD
Harvard University

Kurt Hirschhorn, MD
Mount Sinai Medical Center

Michael M. Kaback, MD
U.of California at San Diego

Edwin H. Kolodny, MD
New York University

Irwin J. Kopin, MD
National Institutes of Health

James Lupski, MD, PhD
Baylor College of Medicine

Peter N. Ray, PhD
University of Toronto

Conrad M. Riley, MD, Hon.
University of Colorado

Adele Schneider, MD
Albert Einstein Medical Center

Eric Schon, Ph.D.
Columbia University

Contact Us

Dysautonomia Foundation, Inc.
633 Third Avenue, 12th Floor
New York, NY 10017-6706

Tel: 212-949-6644
Fax: 212-682-7625
Email: Info@familialdysautonomia.org
Website: http://www.familialdysautonomia.org
Webmaster: fdinfo@videobureau.com

A copy of the last annual report filed with the New York State Board of Social Welfare may be obtained by writing to:

New York State
Department of State Offices
of Charities Registration
Albany, NY 12231

	Dysautonomia Foundation, Inc About the Foundation The following page offers information about the Dysautonomia Foundation, including our mission and services, chapters, members of the Scientific Advisory Board, and contact information. This Page Includes: Mission and Services Chapters Scientific Advisory Board Contact Us
	Mission and Services Dysautonomia Foundation, Inc. 633 Third Avenue,12th Floor New York, NY 10017 (212) 949-6644 President: David Brenner Executive Director: Lenore Roseman Assistant Executive Director: Maryon Weill Click here to read The Dysautonomia Foundation: What We Do, an article distributed at Dysautonomia Day 2001. Click here to read a summary of the minutes from Dysautonomia Foundation Board of Directors meetings. Click here to submit a question to the Foundation. The Dysautonomia Foundation, Inc. is a non-profit organization founded in 1951 by the parents of children with FD. The organization is headquartered in New York City with sixteen chapters located throughout the United States, Canada, Great Britain and Israel. Supporting Clinical Care The Dysautonomia Foundation supports clinical medical care for people with FD by: Maintaining the Dysautonomia Treatment and Evaluation Center at New York University Medical Center Maintaining the Israeli FD Center at Hadassah Hospital in Jerusalem Supporting Scientific Research The Dysautonomia Foundation supports research studies into FD and the FD gene. Basic scientific research regarding FD is currently being supported at a number of prestigious hospitals and universities including: New York University Medical Center, New York Mt. Sinai Medical Center, New York Medical College of Wisconsin University of Oregon Johns Hopkins Medical Center, Baltimore Bar-Ilan University in Israel Hadassah Hospital/Hebrew University Massachusetts General Hospital Grant applications are reviewed annually by a prestigious medical advisory board. Supplying Informative Material The Dysautonomia Foundation provides a continual flow of information to families and other lay and professional persons who request medical, educational, or promotional material concerning FD. Newsletter- published biannually Periodic bulletins regarding new breakthroughs and care Brochures and Parent Care Manual Annual Dysautonomia Day with workshops for families and patients Bibliography History, Programs and Accomplishments - Fact Sheet This Web Site The Familial Dysautonomia Resource Guide How You Can Help A tax deductible contribution to the Dysautonomia Foundation will help in the following ways: Further research into FD and the FD gene; Provide grants for eminent scientists and researchers at leading hospitals around the world to study FD; Maintain the valuable clinical care and research at the Dysautonomia Centers at New York University Medical Center and at Hadassah Hospital in Israel.
	Chapters Boston . Greater Boston . Massachusetts Chicago . Northfield . Illinois Dysautonomia Society of Great Britain Bernie Hattenbach . Norwalk . Connecticut Illinois . Niles . Illinois Israeli . Herzlia Long Island . North Woodmere . New York Maryland . Randallstown . Maryland Michigan . Southfield . Michigan Montreal . Montreal . Canada Southern California . Tarzana . California South Florida . Sunrise . Florida Toronto and Tikvah . Toronto, Canada Helen Volein . Northern New Jersey Worcester County . Worcester, Massachusetts
	Scientific Advisory Board 2003 Chairperson Gail E. Sonenshein, PhD Boston University Medical School Felicia B. Axelrod, MD New York University Michael J. Brownstein, MD, PhD National Institutes of Health Joseph Dancis, MD, Hon. New York University Robert Desnick, MD, PhD Mount Sinai Medical Center Robert Gross, PhD Dartmouth College James Gusella, PhD Harvard University Kurt Hirschhorn, MD Mount Sinai Medical Center Michael M. Kaback, MD U.of California at San Diego Edwin H. Kolodny, MD New York University Irwin J. Kopin, MD National Institutes of Health James Lupski, MD, PhD Baylor College of Medicine Peter N. Ray, PhD University of Toronto Conrad M. Riley, MD, Hon. University of Colorado Adele Schneider, MD Albert Einstein Medical Center Eric Schon, Ph.D. Columbia University
	Contact Us Dysautonomia Foundation, Inc. 633 Third Avenue, 12th Floor New York, NY 10017-6706 Tel: 212-949-6644 Fax: 212-682-7625 Email: Info@familialdysautonomia.org Website: http://www.familialdysautonomia.org Webmaster: fdinfo@videobureau.com A copy of the last annual report filed with the New York State Board of Social Welfare may be obtained by writing to: New York State Department of State Offices of Charities Registration Albany, NY 12231