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PADDLING FOR FAMILIAL DYSAUTONOMIA
Hope United and Hope United Too race
for the Dysautonomia Foundation in the
Philadelphia International Dragon Boat Festival
Photos - Click Here

The Old York Road Temple - Beth Am Community, located in Abington, Pennsylvania, participated in the Philadelphia International Dragon Boat Festival on Saturday, October 3rd, 2009 to raise funds for the Dysautonomia Foundation.  This all day event was held on Philadelphia’s scenic Schuylkill River.

Click here to read the Philadelphia Inquirer article about this event. Click here to read the Jewish Exponent article about this event.

 

   

 Please support their efforts with a donation to the Dysautonomia Foundation
Click here to donate online


When Beth Am's Rabbi Lawrence Sernovitz shared with fellow congregants that he and his wife Becky had learned that their young son Samuel has familial dysautonomia (FD), the congregation came together to support the Sernovitz family and adopted the name "Hope United."

After hearing the stunning news, a couple of Beth Am congregants were inspired to raise funds for the Dysautonomia Foundation, a nonprofit public charity that supports medical treatment, research, public awareness and social services for the benefit of children like Sammy who are afflicted with FD.

Inspiration lead to an idea, and the idea became an exciting project that provided congregants with an opportunity to come together as a team and help create awareness about, and raise funds for FD. In 2009 Beth Am sponsored two teams – Hope United and Hope United Too – to race in the Philadelphia International Dragon Boat Festival on Saturday, October 3rd, 2009 on the Schuylkill River. All of the donations raised for this great event support the Dysautonomia Foundation, Inc.

Beth Am members have joined in the fun and excitement of the Dragon Boat Festival. The paddlers move in unison (with a little practice), combining strength with teamwork in a boat whose elaborate design originates in ancient China. Dragon boats are the world’s largest flat water racing canoes, propelled by a crew of 20 plus a drummer and a steersperson. It is held on the Philadelphia Schuylkill River Race Course along Kelly Drive in Fairmount Park, one of the most beautiful and largest parks in our country.  

For more information, contact co-captains
Peggy Robertson peggyrobertson@comcast.net 215-886-3860 or
Alison Dryer rnalison@aol.com 215-884-0376
Log on to http://www.oyrtbetham.org to learn more about Old York Road Temple - Beth Am

 Please support their efforts with a donation to the Dysautonomia Foundation
Click here to donate online

The Dysautonomia Foundation is a registered 501(c)3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.

 Dysautonomia Foundation, Inc.
 315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Email: info@familialdysautonomia.org
 Web: www.familialdysautonomia.org


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