THE FOUNDATION SAYS “THANK YOU”
The first step toward
helping our dreams of preventing FD become a reality was to determine the
carrier status of our extended family members. During the month of
April the Dysautonomia Foundation sponsored free FD Carrier testing for
all the FD families, parents, relatives over the age of 18, and partners
of known carriers. The tests were arranged for at both NYU Medical Center
and Mt. Sinai Medical Center. Genetic counseling was also provided at
these testings. Approximately 500 people were tested at this time.
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