FD Events
September 2016
Dysautonomia Foundation, Inc.
The Dysautonomia Foundation is a registered 501(c)3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.
Dysautonomia Foundation, Inc.
315 W 39th St, Suite 701, New York, NY 10018
212-279-1066

 
copyright (c) 2015 Dysautonomia Foundation, Inc.

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2013 FD Cycle Tour


Personalized letters are the best way to engage potential donors. Use the letter to lay out the facts -- that you will be participating as a cyclist in the Tour de Foliage FD Cycle Tour, riding 15 or 40 miles through Westchester County and that you would like to offer them the opportunity to help you support people living with a severe and debilitating genetic disorder known as FD. Include some facts about FD and what has inspired you to participate. Send your letter to everyone you have an email or mailing address for. Don't forget to include a link to your donation page or a donation form and a pre-addressed return envelope.

To makes things simple, we crafted a few sample letters for you to copy and paste as you see fit:



Here’s a cause that needs our attention and help.

I am riding in the 13th Annual Tour de Foliage Cycle Tour on September 20th to raise funds for the treatment and research of an exceedingly rare disease called familial dysautonomia (FD). FD is a complex and debilitating genetic disorder that afflicts approximately 350 people worldwide, some of whom live in our own community. Please take the time to get an idea of how inspiring and brave this group of people is by watching this short video: www.familialdysautonomia.org/video/extraordinary.htm.

FD affects every involuntary bodily function including breathing, blood pressure control, swallowing, and perception of pain and temperature. Because the population suffering from this disease is so small, the families and friends of people with FD are challenged to tirelessly raise funds to push treatment and research toward a cure. Let’s show this amazing group of people that we care.

The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Dysautonomia Foundation, please go to www.familialdysautonomia.org.

This is a cause in which you can make a real and lasting impact. I am asking you to consider any level of support for my efforts to help raise money for FD research. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request. To support my ride, please go to: www.fdcycletour.org, click on “Sponsor a Rider” and look for my name.




Here’s a cause that needs our attention and help.

I am a “virtual” rider in the 13th Annual Tour de Foliage Cycle Tour on September 20th to raise funds for familial dysautonomia (FD) treatment and research. FD is a complex and debilitating genetic disorder that afflicts approximately 350 people worldwide, some of whom live in our own community. Please take the time to get an idea of how inspiring and brave this group of people is by watching this short video: www.familialdysautonomia.org/video/extraordinary.htm.

I cannot ride at the event in Westchester, but I want to participate as much as I can to make the lives of people with FD better. FD affects every involuntary bodily function including breathing, blood pressure control, swallowing, and perception of pain and temperature. Because the population suffering from this disease is so small, the families and friends of people with FD are challenged to tirelessly raise funds to push treatment and research toward a cure. Let’s show this amazing group of people that we care.

The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Dysautonomia Foundation, please go to www.familialdysautonomia.org.

This is a cause in which you can make a real and lasting impact. I am asking you to consider any level of support for my efforts to help raise money for FD research. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request. To support my ride, please go to: www.fdcycletour.org, click on “Sponsor a Rider” and look for my name.




Here’s a cause that needs our attention and help.

I am sponsoring ___________ in the 13th Annual Tour de Foliage Cycle Tour on September 20th to raise funds for the treatment and research of an exceedingly rare disease called familial dysautonomia (FD). FD is a complex and debilitating genetic disorder that afflicts approximately 350 people worldwide, some of whom live in our own community. Please take the time to get an idea of how inspiring and brave this group of people is by watching this short video: www.familialdysautonomia.org/video/extraordinary.htm.

FD affects every involuntary bodily function including breathing, blood pressure control, swallowing, and perception of pain and temperature. Because the population suffering from this disease is so small, the families and friends of people with FD are challenged to tirelessly raise funds to push treatment and research toward a cure. Let’s show this amazing group of people that we care.

The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Dysautonomia Foundation, please go to www.familialdysautonomia.org.

This is a cause in which you can make a real and lasting impact. I am asking you to consider any level of support for my efforts to help raise money for FD research. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request. To sponsor ___________, please go to: www.fdcycletour.org, click on “Sponsor a Rider” and select _______________'s name from the list.




Here’s a cause that needs your attention and help.

The 13th Annual Tour de Foliage will take place on Sunday, September 20, 2015. Originated by families and friends of people with a rare genetic disease, this amazing event has grown into an important day for cycling enthusiasts and all those who care about familial dysautonomia (FD). FD is an exceedingly complex and debilitating genetic disorder that afflicts approximately 350 people worldwide, some of whom live in our own community. Please take the time to get an idea of how inspiring and brave this group of people is by watching this short video: www.familialdysautonomia.org/video/extraordinary.htm.

FD affects every involuntary bodily function including breathing, blood pressure control, swallowing, and perception of pain and temperature. Because the population suffering from this disease is so small, the families and friends of people with FD are challenged to tirelessly raise funds to push treatment and research toward a cure. Let’s show this amazing group of people that we care.

The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Dysautonomia Foundation, please go to www.familialdysautonomia.org.

While we wait for a cure, dedicated families work diligently to find definitive treatments and therapies on behalf of the Dysautonomia Foundation. The lives of FD patients are significantly longer and better as a result.

This is a cause in which you can make a real and lasting impact. The FD Tour de Foliage has become a key part of the on-going effort to help the FD population. There are many ways to support us and make the 11th annual FD Cycle Tour better than ever. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request.

We are gratefully accepting sponsors for the following items:

- Platinum Sponsor - $10,000 to sponsor T-shirts featuring company logo, and three mile markers on the course.
- Gold Sponsor - $5,000 to sponsor Goody Bags featuring company logo, and two mile markers on the course
- Silver Sponsor - $2,500 to sponsor bandanas or water bottles with company logo, and a mile marker
- 40 Mile Marker -$1,500 to sponsor the featured mile marker on the 40-mile course
- 15 Mile Marker - $1,000 to sponsor the featured mile marker on the 15-mile course
- All other Mile Markers - $500 each

We also would be grateful for your donation of items that will help make the event a success:

- Donate Food or Beverages for Participants and Volunteers
- Donate Raffle Prizes for Riders
- Donate Goody Bag Items and Coupons
- Companies that donate $250 or more in goods/services will have their logo printed on the Tour t-shirt.

Your generosity is greatly appreciated. To learn more about FD and the Tour de Foliage, please go to: www.fdcycletour.org.

Contact Us

Call:
212-279-1066 for more information

Email:
contact@fdcycletour.org

Mail: 315 West 39th Street, Suite 701, New York, NY 10018




 
This event is organized by the Dysautonomia Foundation, Inc.,
a public charity and a 501(c)(3) nonprofit organization
funding treatment and research for familial dysautonomia (FD).