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A Walk in support of treatment and research
for Familial Dysautonomia (FD)
Event Page
Sponsor
a Walker
Photos
FD is a Jewish-Ashkenazi disease; 1 in 27 Ashkenazic Jews are carriers. People with FD do not have proper control of their autonomic nervous system and are unable to control functions -- such as breathing, digesting, crying, and swallowing -- that the average person takes for granted. FD is rare but we are hoping that the money we raise at this walk can go a long way in helping those who struggle with the disease. By contributing to research that helps FD patients
obtain improved medical care and increased life expectancy, our efforts can change the lives of those afflicted.
Participants in the FD walk will pay an $18 registration fee and then will each find sponsors to reach their personal fundraising goal (suggested goal is $100). Sponsors can donate money through
this website to the participants personal fundraising page. There will be checkpoints along the 7 mile walk (starting at The NYU Bronfman Center for Jewish Life, 7E 10th Street, and continuing north along the West Side Highway to 59th St.). At check in, participants will receive a sweatshirt, water bottle and information about FD.
Sign up today to be a part of this meaningful and fun experience of raising money and awareness for such a devastating Jewish disease.
For questions, information, or to sponsor this event, feel free to contact
Shira Falk at Shira.falk@gmail.com
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Please help spread the word -- pass this message along
to others who might be interested in
walking or sponsoring this event.
The Dysautonomia Foundation is a nonprofit organization supporting the best possible medical care
and scientific research for the benefit of people afflicted with FD. The Foundation also conducts social service
and public awareness programs for the benefit of the FD community and for those in the general population
who may be at risk for FD.
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