Changes, Progress at NYU Dysautonomia Center
There have been big changes in the study of FD and the treatment
of FD patients at NYU Medical Center. A new endowed
professorship in the School of Medicine�s department of
Neurology has been established to focus on adult care and
clinical research, and the NYU Dysautonomia Treatment and
Evaluation Center, which has now been renamed to simply "The
Dysautonomia Center," has been completely remodeled and expanded
to include a new clinical research lab that focuses exclusively
Endowed at NYU School of Medicine
The newly endowed professorship, named in honor of Dr. Felicia
B. Axelrod, has been funded by the Dysautonomia Foundation
through the generous contributions of FD families and friends of
the foundation. Along with the first professorship, in the
department of Pediatrics, this new chair in Neurology will
guarantee that there will always be two academic positions at
NYU School of Medicine focusing on the study and care of FD
children and adults. The new chair will be awarded to Dr.
Horacio Kaufmann on October 1st, 2007.
Construction of New
Dysautonomia Center is Completed
In January 2008, construction was completed on the new
Dysautonomia Center at NYU Medical Center. The size of the
Center has been doubled by joining the existing space with the
suite next door. There are now several new offices and a new
Dysautonomia Research Lab. The new lab is the only facility in
the world constructed specifically for FD-related clinical
studies. The mission of the Center is to enhance FD care and
investigate new therapies for FD, with a comprehensive focus on
pediatric care, adult care and clinical research. The Center now
includes ten full-time members of staff dedicated to providing
the best possible care for people with FD.
|Back Row: Lucy Norcliffe-Kaufmann,
PhD; Felicia B. Axelrod, MD; Horacio Kaufmann, MD;
Svetlana Lenina, MD; Gabrielle Gold-von Simson, MD; Dena
Front Row: Giselle Gomez, Andrei Voustianiouk, PhD;
Maria Tellez, MD
expansion of the Center and the establishment of the
professorship could not have been accomplished without the generous support of the FD community.
generous contributions from many FD families, along with their friends and
associates, an unprecedented amount of over three million
dollars was raised for the establishment of the new
professorship and construction of the new Center.
To commemorate the generosity of those involved, a Wall of Recognition will be
established at the Dysautonomia Center, and several of the new
offices will be named in honor of the largest donors.
Dysautonomia Research Lab, which could not have been built
without the extremely generous gift of $300,000 from the family
of Barbra Waldfogel and Eric Berg, has been established in memory of
their son, Zachary AJ Berg.
The lab has been outfitted with many new features,
including sky tiles that simulate a skylight, and new
equipment purchased through a grant from the Dorothy B
A patient is examined in the Tilt
Table Room at the new Dysautonomia Research Lab. The lab
has been outfitted with new equipment and includes "sky
tiles" that simulate a skylight in the lab.
Introducing Horacio Kaufmann, MD
Horacio Kaufmann, MD, an eminent
researcher and doctor who specializes in autonomic disorders,
joined the staff of the Dysautonomia Treatment and Evaluation
Center (DTEC) in October 2007. Dr. Kaufmann officially joined
the NYU Dysautonomia Center team on Oct 1st 2007, when he became
Co-Director of the Center and the Director of the new
Dysautonomia Research Lab. Dr. Kaufmann will be responsible for
the care and treatment of FD adults and will lead the new
laboratory for FD clinical research. He will be joining the NYU
School of Medicine faculty as a Professor of Neurology.
�We are extremely fortunate to be able to bring onto our staff such a
talented and highly qualified colleague� comments Dr. Axelrod,
who has been Director of the Center since its inception in 1970.
�Dr. Kaufmann�s expertise and insight will significantly enhance
our ability to conduct clinical research and provide excellent
Dr. Kaufmann comes with 25 years of experience and exceptional
qualifications, having served as Director of the Neurology
Clinic at The Mount Sinai Medical Center in New York City, where
he specialized in autonomic disorders. He received his medical
degree from the School of Medicine of the University of Buenos
Aires in Argentina. He trained in internal medicine and
neurology and completed his residency at Mt. Sinai School of
Medicine, where he was a Professor in the department of
From 2005-2007, Dr. Kaufmann served as President of
the American Autonomic Society, and is currently a member of the
board of directors of that organization. He is on the editorial
board of several prestigious medical journals and is the
editor-in-chief of Clinical Autonomic Research, the official
journal of the American Autonomic Society. Dr Kaufmann is a
member of the Clinical Autonomic Research Society and the
European Federation of Autonomic Societies.
�I am delighted to have the opportunity to make a difference in
the lives of people with FD,� says Dr. Kaufmann, adding �I am
looking forward to partnering with Dr. Axelrod, the Dysautonomia
Foundation and all the fine professionals who have devoted their
efforts to overcoming this devastating disorder.� Dr. Kaufmann
is married to Lucy Norcliffe-Kaufmann. They live in New York
City with their son, George.