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Dysautonomia Foundation News

 

What's New?

Winter 2013-14 FD Newsletter - DYScourse Winter 2013-14

Fall 2013 FD Newsletter - DYScourse Fall 2013
Our FaceBook page features pictures from our 2012 and 2013 Events
New Series of FD videos features FD parents - FD Videos
FD Comics - No Tears, Life with FD
Spring 2013 FD Newsletter - DYScourse Spring 2013
28th Annual FD Day Conference - June 2013 FD Day
Winter 2013 Newsletter - DYScourse Winter 2013
Spring 2012 Newsletter - DYScourse June 2012
Photos from the April 2012 Path to the Cure event
Photos and song from the March 2012 "Songs of Love" event
Photos from the March 2012 7th Annual FD Bowlathon
FD experts from around the world discuss their work Research Conference
A stroll along the Hudson River can help people with FD Walk for FD
FD family featured in CBS News story on Jewish Genetic Disease Screening
FD experts present research at scientific conferences in Brazil
Photos from 8th Annual Tour de Foliage 2011 FD Cycle Tour
FD Day Conference Abstracts, Photos, Details 2011 FD Day
Pennsylvania Designates April 10th as FD Awareness Day
NY State Designates Feb 28th as Familial Dysautonomia Awareness Day
Landmark FD Study in Neurology: Unraveling the Mystery of FD
Article in The Jewish Star: Jewish Students Walk for Dysautonomia
We Walk for FD: College Students Organize Walkathon
Interview: Dr. Felicia Axelrod & David Brenner: FD Radio Segment on WFAN
A Family's Efforts to Raise FD Awareness and Funds: Article in Rye Patch
FD Screening - Rabbis Must Do Their Part: Article in The Forward
FD Screening & Education: NY Governor Paterson Vetoes FD Legislation
Our Publications: FD Treatment Manual; FD Halacha Guide
FD Day Recap, Photos, Presentation Abstracts and More: FD Day 2010
FD Photo Competition: The World Through My Eyes
Dysautonomia Foundation Obtains POC Units: Oxygen for Air Travel
Visiting Expert Focuses on FD: Sympathetic Nerve Response in FD Patients
Study of FD is Part of a National Initiative: Autonomic Disorders Consortium
FD Featured in Science: Chasing a Disease to the Vanishing Point
From High School to "Real" World: Samantha Myers Tries a New Program
FD Featured in New Novel: "So Much For That" by Lionel Shriver
Fashion Show For FD: Cherry Hill High School East Fashion Club
Air Travel & Onboard Oxygen: Portable Oxygen Concentrators
The Bravest Boy: Children's book inspired by FD
A true hero: FD surgeon goes to Haiti
Our Videos: www.famdys.org/video
Awareness and Testing Event: www.famdys.org/hannah
CD for FD: www.famdys.org/believe
 
Archived FD News editions:
May 2011
December 2010
April 2010
September 2009
March 2009
August 2008
May 2008
February 2008


 

 
 


 
 
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The information provided in the Dysautonomia Foundation web site is intended to educate the reader about certain medical conditions and certain possible treatments. It is not a substitute for examination, diagnosis, and medical care provided by a licensed and qualified health professional. If you believe you, or your child, or someone you know, suffer from the conditions described herein, please see your health care provider. Do not attempt to treat yourself, your child, or anyone else without proper medical supervision.

The Foundation provides linked sites only for the convenience of the visitor. The Foundation does not control nor does it warrant the accuracy of any information provided by these linked sites. Individually identifiable user information is not collected through this site unless voluntarily submitted to the Foundation by the user. Linked sites may have different privacy policies. Any User information submitted directly to the Foundation will not be shared with other parties without the express written consent of the User.

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The Dysautonomia Foundation will not share any personal information (Name, address, email address) that you submit through this website with any third party organization without your explicit consent.

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The Dysautonomia Foundation is a registered 501(c)3 non-profit organization. Federal ID 13-6145280

Contributions are tax deductible to the extent permitted by law.
 
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315 W 39th St, Suite 701, New York, NY 10018 212-279-1066
(c) 2013 Dysautonomia Foundation, Inc. The FD logo is a registered trademark of the Dysautonomia Foundation, Inc.  
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