In addition to sponsoring the FD Centers at NYU Medical Center and Hadassah Hospital, the Foundation has sponsored a Resource Guide. The guide was compiled in 1997 and is currently being revised; please be advised that some information may be out of date until the update is completed.

The Familial Dysautonomia Resource Guide has been compiled for the purpose of providing guidance and assistance in dealing with a variety of issues. The scope of topics is very broad:

• Health and Medical services
• Benefits
• Education
• Day Care
• Counseling and Family Support
• Social Life
• Job training and Employment Opportunities
• Housing Options and Independent Living
• Equipment and Technology
• Transportation
• Future and Financial Planning
• Other Sources of Help

While this particular guide highlights resources in the greater New York area…

• Much of the information is applicable on a Federal Level.
• Although particular resources available for other states may differ, the general approach to proper authorities is similar.