WHAT'S NEW?

Dysautonomia Foundation, Inc.

WHAT'S NEW?
updated 4/16/06

2006 International FD Day
The 21st annual International FD Day will be held at NYU on June 4th, from 10am - 3pm . Please click here for details.

3nd Annual FD Cycle Tour: Tour De Foliage
The second annual FD cycle tour, Tour De Foliage, will be held on October 8th at Pace University, Pleasantville, NY. Please click here for details

1st Annual FD Bowl-a-Thon
The first annual FD bowl-a-thon was held in Woodmere, NYon March 19th. Please click here for details

Blue Genes 2006
The Blue Genes cocktail party and fashion show was held on February 12th in NYC. Please click here for details

FD Bracelets
Etta Fainblatt has designed a beautiful bracelet to help fund research for a cure for FD.

Foundation-Sponsored Research: Breaking News from Israel
U.S. born Dr. Ron Goldstein, Professor at Bar-Ilan University in Israel and a scientist funded by the Dysautonomia Foundation, has been the subject of an article in the Jerusalem Post as a result of his exciting stem cell studies which could eventually lead to treatment for FD. His group is the first to have produced peripheral sensory and sympathetic nerve cells (which degenerate in FD) from human embryonic stem cells. Click here to see the article. Click here to see another article on Dr. Goldstein's work.

FD Families celebrate the 20th International Dysautonomia Day at NYU
On Sunday, June 5th, FD families and friends gathered at NYU Medical Center with physicians, researchers, service providers and their peers. Included in the program was a scientific research progress update by the Chairman of our Scientific Advisory Board, Dr. Michael Brownstein and a clinical progress report entitled “Focus on the Future” by Dr. Felicia Axelrod . David Brenner, President of the Foundation, presented a Physician Service Award to Dr. Stuart Ditchek in acknowledgement of his commitment to the FD community, not only as a dedicated pediatrician, but also for his role in Camp Simcha Special – a very special camp enjoyed by our FD young people. Fun and games, work shops, clowns, rap sessions all helped to ensure the success of the day.

Familial Dysautonomia "What's New" all items (c) Dysautonomia Foundation, Inc. 2002, 2003, 2004, 2005

	Dysautonomia Foundation, Inc. WHAT'S NEW? updated 4/16/06
	2006 International FD Day The 21st annual International FD Day will be held at NYU on June 4th, from 10am - 3pm . Please click here for details. 3nd Annual FD Cycle Tour: Tour De Foliage The second annual FD cycle tour, Tour De Foliage, will be held on October 8th at Pace University, Pleasantville, NY. Please click here for details 1st Annual FD Bowl-a-Thon The first annual FD bowl-a-thon was held in Woodmere, NYon March 19th. Please click here for details Blue Genes 2006 The Blue Genes cocktail party and fashion show was held on February 12th in NYC. Please click here for details FD Bracelets Etta Fainblatt has designed a beautiful bracelet to help fund research for a cure for FD. Foundation-Sponsored Research: Breaking News from Israel U.S. born Dr. Ron Goldstein, Professor at Bar-Ilan University in Israel and a scientist funded by the Dysautonomia Foundation, has been the subject of an article in the Jerusalem Post as a result of his exciting stem cell studies which could eventually lead to treatment for FD. His group is the first to have produced peripheral sensory and sympathetic nerve cells (which degenerate in FD) from human embryonic stem cells. Click here to see the article. Click here to see another article on Dr. Goldstein's work. FD Families celebrate the 20th International Dysautonomia Day at NYU On Sunday, June 5th, FD families and friends gathered at NYU Medical Center with physicians, researchers, service providers and their peers. Included in the program was a scientific research progress update by the Chairman of our Scientific Advisory Board, Dr. Michael Brownstein and a clinical progress report entitled “Focus on the Future” by Dr. Felicia Axelrod . David Brenner, President of the Foundation, presented a Physician Service Award to Dr. Stuart Ditchek in acknowledgement of his commitment to the FD community, not only as a dedicated pediatrician, but also for his role in Camp Simcha Special – a very special camp enjoyed by our FD young people. Fun and games, work shops, clowns, rap sessions all helped to ensure the success of the day.